01.03.2018
Introducing… Mackenzie’s mission. The federal government’s plan to increase funding for access to genetic testing to the community. On the 1st of March, a day after Rare Disease Day, the Federal Health Minister Greg Hunt, made the announcement that they have plans to invest tens of millions of dollars to eradicate life-threatening genetic conditions. The proposed study is a long-term plan that would take at least a decade to finalize.
Read more about the news here.
Follow Rachel Casella, Mackenzie’s mum’s blog here.
09.05.2018
Mackenzie’s mission update:
As part of the federal budget, the Government allocated $500 million for the Australian Genomics Health Futures mission.
Mackenzie’s Mission will be the flagship project, with $20 million being provided for pre-conception screening study for rare and debilitating birth disorders including Spinal Muscular Atrophy, Fragile X and Cystic Fibrosis.
This study will provide screening for 10,000 couples across Australia. If couples are found to be at risk of having a child with a serious genetic condition, they will be offered financial support for IVF treatment.
Read more about the announcement here.
